Resources
Foundations:
- Courageous Parent Network (videos, podcasts, printable guides, Guided Pathways, and blogs): https://courageousparentsnetwork.org/
- Fighting HARD (Having A Rare Disease) Foundation: fightingHARDfoundation.org
- MeFine Foundation (emotional and financial support): https://www.mefine.org/
Podcasts & Instagram Pages:
- Child Life on Call Podcast (@childlifeoncall)
- Raising Disabled Podcast (@raisingdisabledpodcast)
- The Special Needs Mom Podcast (@thespecialneedsmompodcast)
Books:
- Parenting Children with Health Issues: Essential Tools, Tips, & Tactics for for Raising Kids With Chronic Illness, Medical Conditions, and Special Healthcare Needs by Foster Cline and Lisa Greene (https://www.amazon.com/Parenting-Children-Health-Issues-Conditions/dp/1930429894)
- Self-Compassion for Parents: Nurture Your Child by Caring for Yourself by Susan M. Pollak, EdD (https://www.amazon.com/Self-Compassion-Parents-Nurture-Caring-Yourself/dp/1462533094)
- When Your Child Has a Chronic Medical Illness: A Guide for the Parenting Journey by Frank J. Sileo, PhD (https://www.amazon.com/When-Child-Chronic-Medical-Illness/dp/1433833816)
- When Your Child Is Sick: A Guide to Navigating the Practical and Emotional Challenges of Caring for a Child Who Is Very Ill by Joanna Breyer, PhD (https://www.amazon.com/When-Your-Child-Sick-Navigating/dp/B07DX3K5LY)
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